Welcome to the ALS Association Advocacy Action Center!

It is through your advocacy that, together, we will create a world without ALS. The actions of state and federal governments have a tremendous impact on people living with ALS. It's important that those leaders hear directly from you.

Please use this action center to review our issues, learn about your elected officials, and take action in support of the brave individuals living with this disease.

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Ask Your Member of Congress: Sign the FY2026 ALS Research Appropriations Dear Colleague Letter3 points

Contact your U.S. Representative Today!

Write

Share Your ALS Story to Help Ensure Access to Genetic Testing & Protect Against Discrimination3 points

Share your personal ALS story and why access to genetic testing without fear of discrimination is essential.

Tell

Welcome to the ALS Association Advocacy Action Center!

Ask Your Member of Congress: Sign the FY2026 ALS Research Appropriations Dear Colleague Letter3 points

Share Your ALS Story to Help Ensure Access to Genetic Testing & Protect Against Discrimination3 points

Share Your ALS Story on Video3 points

Tell 119th Congress: No Cuts to ALS Research Funding3 points

Urge Your Governor to Recognize May as ALS Awareness Month3 points

Share Why Medicare Supplemental Insurance Matters to You3 points

Share Your ALS Clinic Experience3 points

Ask Your Members of the 119th Congress to Join the ALS Caucus3 points

The ALS Association

The ALS Association